What does M.S. really stand for

What does M.S. really stand for

  • Multiple Sclerosis?
  • Major Seclusion
  • Many Situations?
  • My Story? …

My Story begins…Hello and welcome to my blog. This is my first attempt at blogging so please excuse me if I don’t follow the normal structure.

I wanted to start this blog because I was recently diagnosed with secondary progressive Multiple SclerosisMaybe I’ve been looking in the wrong places, but all I can find is medical advice; even when I looked on the MS Society site I could not find anything from the personal prospective of someone with the disease. I dearly wanted some information about how to cope on a day-to-day basis. So for that very reason I decided to start my very own blog so that I could share my stories and information with others in a similar situation in the hope that it may help.

Here is the science bit: taken from the MS Multiple Sclerosis Society web site.

What is Multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disease in which the body’s immune system attacks its own central nervous system (CNS), which is made up of the brain and spinal cord. With MS, the immune system attacks and damages or destroys the myelin, a substance that surrounds and insulates the nerves, causing a distortion or interruption in nerve impulses traveling to and from the brain. This results in a wide variety of symptoms.

Multiple sclerosis (MS) is a neurological condition which affects around 100,000 people in the UK. Most people are diagnosed between the ages of 20-40, but it can affect younger and older people too. Roughly three times as many women have MS as men.

There are basically three types of MS.

Relapsing Remitting MS (RRMS): In relapsing remitting MS, people have distinct attacks of symptoms, which then fade away either partially or completely. Around 85 per cent of people with MS are diagnosed with this type.

Secondary progressive MS (SPMS): is a stage of MS, which comes after relapsing remitting MS in many cases. Neurologists generally agree secondary progressive MS is a “sustained build up of disability, independent of any relapses”.

Primary progressive MS (PPMS): has this name because from the first (primary) symptoms it is progressive. Symptoms gradually get worse over time, rather than appearing as sudden attacks (relapse)

I have SPMS which means I have been suffering for many years and didn’t know it, but since my diagnoses it has become obvious that systems where there for years but we didn’t know. Anyway more on that to follow…

I have used the name Amazon lady because this was the name given to me many years ago, when a Doctor referred me to one of his colleagues with a letter “which I had to open’…The referral letter started like this – “Dear John I am sending you this Amazon of a Lady, and would appreciate your feedback”…  So to this day I refer to myself as Amazon Lady.

I thought that I should write a little about myself so that you have a picture in your mind of who I was before my diagnosis…  I was a loud proud 6.1-foot “Amazon- lady” with an eye for colour and a sense of style. I took great pride in my appearance, always wore makeup had my hair cut and styled regularly, I had to look my best at all times. I had beautiful clothes and shoes with matching handbags and tried to find a scarf to compliment my outfit “only if required”.  (My sister used to say that I was the only person she knew that could just throw a scarf around her neck and look like a movie star. I don’t know about the movie star thing but it was nice to think people thought of me as stylish). I had a good job a loving Husband, a Son and a beautiful home; admittedly mortgage to the hilt, but we managed like most people. We had a couple of weekends away every year and visited many different city’s in the world; we also had a large caravan that was knitted out with all the mod cons and we traveled all over the country in our second home on wheels. Things were not perfect; but life was good! And I was considered to be successful.

Then the day came when I was given the diagnoses.

Many times people have asked me how I felt and all I can say is… “my whole world came crushing down”. What the hell was going to happen to me?  I left that consultants office in a complete trance, the world was just rushing passed me and it felt like I was watching my life though the window of a fast moving train heading straight towards a tunnel without an end, the light was rapidly going out and I had no control over any of it, my life as I had know it felt as though it had ended.

I know that sounds really dramatic but that’s how I felt. I have never really spoken about these things before because I never really had anyone to talk to about it, and you just carry on until the time comes when like now when someone or something prompts you to get it out. I have found great comfort in putting this all down in writing, if it helps just one person going though this then I’m glad.

Getting back to my diagnoses, which incidentally took 14 months of tests to finally find out what i think I already knew. ” I had M.S.  When the consultant said, “I’m sorry to tell you but I can know confirm you have secondly progressive MS” my husband and I sat in silence for a few minutes and then I said, “ok thank you! But can we go back a few steps because I don’t really want MS”.

At first it was the biggest shock although as I have already said… I kind of knew that something was really wrong; in some respects it was a bit of a relief to finally have an answer to the many unexplained questions I had about my ongoing health issues. It was kind of like saying, “See! I was not bull shitting – there really was something wrong with me all the time”.


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A little note to Dr.Seuss – I love this little quote from Dr.Seuss i hope he does not mind me placing it on my page for everyone to enjoy. My sister sent me this a few months back and i have a copy of it by my bed to help me smile…


Well that’s me started I don’t want to bore you so that’s all for now, I hope you come back and join me on my personal journey…

Amazon Lady

What does M.S. really stand for.

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