Suprapubic Catheter

Supra Pubic CatheterSuprapubic Catheter

Suprapubic Catheter finally in place: I went in to hospital yesterday at 12.50pm and was given a general anesthetic at 1.30pm. Arrived in recover and woke at 3.30pm, then I was wheeled back to my room at put into bed at 4.30pm; I was given a ham sandwich, yogurt and coffee. The Surgeon came in said all went well but glad he did the operation under X-Ray because my bladder wasn’t quite where it normally should be; instead of being on the left it was central and lower than normal… but no problems, Suprapubic Catheter inserted ok- He did have to use a number 5 drill bit to get through all the fat 🙂 Not really … he didn’t.

I asked if the whole would shrink as I lost more weight, he just smiled at that question but said he had put dissolvable stitches in the wound, and a dressing was put around the catheter, he told me not to get the dressing wet, or clean or redress the wound for about three days.

The compression stockings they gave me (don’t match any outfit I’ve got but never mind) should stay on for a week, to avoid DVT  (deep vein thrombosis) then the pharmaceutical guy came in to give me a weeks supply of antibiotics and the nurse gave me some extra dressings. I was dressed by my husband and then was very pleased to hear that I was to be discharged because the procedure went well with no complication.

I thanking all the nurses as I left the hospital… We got home at 7.15pm and enjoyed my freshly cooked salmon salad my darling husband then cooked for me. I slept really well considering what I went through, but I think getting rid of that blessed hanging Indwelling catheter made a huge difference – now all i have to do is get use to the new routine.

Day one with new Suprapubic catheter: I gingerly took a look under the bedclothes to make sure nothing had happened overnight and to my great relief everything was still in place no leakage, night bag still upright and connected. It is a very strange colour though colour of rosé wine, (not for drinking of course it must just be blood and medication) it does make you think what’s in rosé wine though! No not really that’s just my sense of humour or maybe still the effects of the general anesthetic.

Anyway I had to work out how to get to the bathroom still attached to the night drainage bag (decided to keep attached till I worked out how to ware the hip bag) so put the night bag on my tray on my Zimmer frame and taking it easy and being careful not to slip with my new support stockings on; managed to empty it in the toilet and sat carefully down and placed bag on its frame on the floor, got up carefully holding on to the support rail by the toilet, the sink and got to my feet and put the night bag back on the Zimmer frame and went and sat on the bed.

With hubby’s help put the Velcro strap around my waist and attached the hip bag to the catheter, got dressed and went downstairs with the help of “Mario” my friendly stair lift (those that know me are aware I have to give my equipment names) it was a real joy “something you may find a little strange” to not have something sticking into me when I sit down, simple things ah!

Little leakage from my urethra when I bent over ,called the nurse (which she told me to do if I was concerned about anything) she said that as my urethra had not been sealed up completely, a little leakage might happen, this was quite normal as the Urologist would have inserted the catheter as lower down in my bladder as he could, but would not stop leakage happening completely, she suggested I just wear a pad just incase. She reassured me that everything was fine. I still would highly recommend anyone thinking of up grading to a Suprapubic, go for it hopefully you will have the same great experience I have had.

Electric Bed coming Friday.

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Suprapubic Catheter




More MS Updates

More MS Updates.

Operation Date

Operation Date:

Letter received confirming 19th October at our local Private hospital, which will be paid for by the NHS, I was as surprised as the next man, lovely that I’m going into a private hospital, have also had my Urologist appointments at this hospital as well, I’m not complaining, I suppose it’s cost-effective as it keeps the NHS Hospitals lists down. Anyway I’m having a general anaesthetic  but hope to be in and out the same day, I don’t like staying in hospitals even a private one. I suppose it will depend where I’m on the list, if it’s early I should be in and out the same day.

New Bed

Electric bed:

Is now on order, mobility shop received a letter from the MS Society confirming the purchase order. Paul from Mobility came over Monday, we confirmed the height of bed(on height adjustable feet, 6 inches from the floor) headboard, I liked the padded one, but Paul suggest a flat one as my part of the bed is electric, he has found problems when the bed is raised it catches on the padded headboard, so we took his advice and went for the flat headboard, in a cream colour to match the surround of the base. We went for the firm mattress, the one we have now is a firm  orthopedic mattress. They have agreed to remove and dispose of our old bed, and install and demonstrate the new one. Delivery time has been quoted as two weeks, so hopefully will be in before my op, fingers crossed. All that’s left to do is buy a couple of single sheets and single mattress covers. ( will buy more to have a change of sheets later, when finance allows)


Flu Jab :

That is due soon will call the surgery to book myself in, the last thing I want to add to everything else is flu, especially as with all the medication I take I can’t then add cold and flu remedies, most of them contain paracetamol and most of my medication contains either paracetamol or a derivative of it. Be careful yourself if you get a cold or flu, check with your pharmacist before you take over the counter medications.

Sweat Rash

Sweat Rash:

In my groin is due to seating down most of the day, my district nurse has given me a tube of steroid cream that needs to be kept in the fridge, which in its self is a bit of a problem, as I keep forgetting to ask my husband to get it for me so I can apply it, I purchased a tube of Aloe Vera Gel as well, so will try that out during the day, and try to remember the steroid cream for the evening.(if I remember)I do use a feminine wash morning and evening, but it doesn’t help to clear the rash, need to remember to use the cream after I wash, I will have to get it clear before my op on the 19th October.

Weekend Away


We are going the last weekend in October, my husband has booked a lovely (have looked on-line, and has good reviews) hotel in Gloucester, there seems to be lots to do and places to visit. He’s booked a room suitable for a disabled person, and has checked all the access i.e. ability to get to the restaurant etc as we are going half board, don’t want to have to worry about trying to find somewhere to each at night. I will just need to make sure I take everything I need, especially as I will have had my op by then so need to make sure I am well prepared for any eventuality that might happen, it will be like taking a baby away, the paraphernalia that goes with a child, is now going with me.

Thats all for now hope you enjoyed reading More MS Updates.

Bye for now AL


Bladder large enough for a Suprapubic catheter

Thank goodness!… Bladder large enough for a Suprapubic catheter! Last week I had an appointment with my Urologist to have a Cystoscopy which has confirmed that my bladder is actually of the right size “what size that is, I don’t know and didn’t ask either” but he said that I could now have a Suprapubic catheter.

Now I just have to wait for a letter to confirm an appointment. This time I will have to have a general anaesthetic because the operation involves cutting a small hole in my stomach; just above my pubic bone (hence the name Suprapubic) then placing a catheter though that hole so it will take over from the Indwelling catheter I currently have and also have many issues with. I really feel that the suprapubic is the way to go.

My sister is really against me having this done… I can’t see why but I think it’s because she had seen a lady in hospital with a similar catheter that was not cared for particularly well. I don’t think she thinks I can care for it properly, but at 55 I think I can look after myself. I know she only worries but there’s no need too, I need to be able to take care of myself and if that means being extra careful and fastidious about cleanliness then so be it. It is very important for me to remain as independent as possible and it is of utmost importance to maintain as much of my personal dignity as possible. I need to get out of this house and I believe this will allow me to take control again. This is the main reason for not going out, because I am so self-conscious about it. Anyway will keep you informed and let you know when I get my appointment, fingers crossed it won’t be too long.

I contacted a couple of suppliers, the one I get my existing equipment from, plus another that was suggested on the video from the web site below.

I decided to look at the operation on you tube, and also checked out many sites to see all the possible options… which length of catheter and which bags I was going to use?

I want to show the consultant exactly what I want when the time comes, I don’t just want the equipment the NHS supply’s. Might get some resistance but I am determined to have it my way, after all it’s my body and I have to live with it. Still both suppliers are sending me samples so will see which one I will go with.

I don’t want leg bags because they have never worked for me, not with my current catheters anyway. I want a small bag I can tuck in my underwear with a tie that goes around my waist to hold it in place. This set up will mean that I can wear my trousers and leggings again… ok with a long top, but most people wear that over leggings anyhow. At least I will not have to worry about a leg bag falling down again, and I can be more confident and get out and back into the world.

The specialist also suggested I have Botox injections in my bladder at the same time. I asked what that was for, he said with bladder urgency (which is what I suffer from, just one of the side effects of MS) the bladder tends to go into spasms and the Botox stops that so it should stop any leakage from my urethra. So I’ll wait for my appointment, and keep everything crossed.

It was interesting to speak to a really nice and helpful guy from one of the supplier, he told me about his company that was started by a guy who is a paraplegic himself… he couldn’t find what he needed for his particular requirements, so he started his own company.

Please take a look at his website you may also find something that you have been looking for to help with your individual requirements.

7004diagram 7004S-photo

We were discussing the fact that when I had my investigation procedure yesterday, afterwards the nurse replaced my catheter with a new one… it was a male catheter, much longer than the one I have come in with which was a female one… the consultant said that the NHS were now only using male catheters for both male and female, why I ask!…He said that on too many occasions nurses had just picked up catheters without looking to check if male or female, and some female catheters had been fitted into male patient and caused damage to their bladders… so the NHS had made the decision to offer only one catheter male ones.

You can still get female catheters on prescription, but this guy confirmed what the consultant had said, so at present I have a male catheter which is not only extremely long (down to my knees) but much thinner than my female one, so it will only be a matter of time before this one falls out too…that will make a total of 14 catheters in 9 months “must he heading for a record”. I do have my own personal supply of female catheters now, so there are no real worries there.

I hope you have found my post Bladder large enough for a Suprapubic catheter interesting …that’s all for now keep well out there.AL

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