MS when it invades your world

MS invades my world“Today is just another day” Just another day when MS when it invades your world… sure someone said that! or something like that, well today  I woke from my lovely comfortable electric bed (sorry for those that don’t have one but I would definitely recommend it). The morning routine started with the normal stuff… unplugged myself from my night bag, David my husband emptied it for me bless him, checked stomach area around catheter first, that’s doing ok a wipe with an antiseptic wipe, the rest of the area looks as though someone has stubbed out cigarettes on my stomach (slight exaggeration) but can’t think of another way to describe it.

Hair Colour

Decided to colour my hair this morning, I’m always trying to change something or another, since MS invaded my life I have had to find ways to do things myself,  so colouring my hair while in a wheelchair is a bit of a mission. So got out of bed and with my Zimmer frame found my way to the dressing table, I’m afraid I had to do my hair without anything on, as once the colour had taken which takes at least an hour, I was going to the shower, shampoo the colour off and wash, with David’s help of cause, which is so much easier than having to take off clothes over my head with bleach on my hair.

While the colour was doing its thing thought I would turn round on my chair and wheel myself to the pine blanket box at the bottom of our bed, I needed to sort out my catheter bits and pieces that we store there, need to take out items no longer needed, I will be given these to the nurse that it coming next week, to change my catheter for a female one replacing the very long male one that the hospital put in.

Catheter Equipment

Had a box delivered this week, has all the new catheters and bags that I now get from another supplier, I’ve spoken about in previous blogs, Manfred Sauer UK Ltd they are so helpful, they sent samples of different bags so I could try, the guy I spoke to is Phil he is incredibly knowable, talked me through what would be suitable and then even called to see how I got on, that’s what I call customer service, I would definitely recommend you call them and ask for Phil,  if you have any concerns or problems.

I choice the 600 ml hip bags which I actually uses as tummy bags,                  I double up the straps they supply to go around my stomach, these       have a plastic zigzag effect on the back of the straps which make it very comfortable, they have extra Velcro on the front that fits to the bag, I tuck the bag under my pants so I can now wear trousers, which I haven’t been able to do with a leg bag, so I’m much happier and I don’t even realise I’m wearing a bag, until I need to empty it of cause.

Sorting equipment

Back to where I was sorting out the blanket box, took out some things and put in a carrier bag to give to the nurse, and replaced with the new equipment that’s that sorted. Now for my shower, David helped me in and I sat on the shower stool, shampoo hair and had a good wash, after falling a few weeks ago in the shower, we now put a towel over the shower lip so I have a grip for my feet, we have a rubber shower mat which is in the middle of the shower, but the towel over the lip/step to get out works, so out I came and was dried and sat on the bed. David put a new dressing around on my catheter, I then went and sat at the dressing table fully dressed this time, to see my new hair colour, oh maybe I’ve over done it this time, wanted to go blonde but each time I’ve tried nothing is strong enough, I’ve got red hair naturally so it’s very strong when it comes to colours, so decided to use the bleach blonde highlight kit I’ve got, but this time put it all over my hair, David said, wow that’s a bit bright, but it’s ok, when your husbands says that you know it’s bright.

Negative to Positives

MS when it invades your world”, I think this title describes my world very well, I feel I’ve been invaded by something I have no control over, this is not because I’m depressed this is just how it is, the only way I can describe the feel is, if one day you woke up and everything had changed, things will never be the same, I asked my husband what I’m I supposed to do with my life now, surely I can’t just sit in this chair for the rest of my life, this I asked as a very serious question not “poor me what am I going to do” I have to re think my life how can I “Turn the negative into the positive”what am I good at, what can I offer and where can I offer it? So that my next quest, think about the positives.

When MS Invades my world

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My New RED Wheelchair


New RED wheelchair  –  When my Mum & Brother came over from Australia for a visit,  they wheeled me out and about to look round the village they live in some 27 years ago, my brother pushed me but commented on how difficult the wheelchair was to push around, it’s an NHS wheelchair which  is a one fits all” chair, however me being tall and larger than your average bear… I  don’t fit comfortably into the standard chair. Even though the service is excellent, I really needed a chair that is made for my personal needs and that would  cost a great deal which we couldnt afford so have to make do with what I have been given.

Unbeknown to me my Mum had wanted to buy me something that would be useful to me and make my day-to-day life a little easier.
My brother suggest that when we got back to the house and look on line to see if there was a dealer in the area that we could talk to about my needs.  Well! no sooner had we got home than we were off in the car to a near by mobility shop where we met Paul the owner, he was a delight and spoke with great knowledge about the type of wheelchair he thought would best suit my needs.

Much to my surprise my mum said she would pay for whatever he thought would be suitable and the chair he suggested was about £1000 the chair was perfect and the vision of having my very own custom made chair was a fairly tales dream that i never thought possible. But mum said  ” Just order the chair and send me the bill”, and if you need a deposit I will pay. I couldn’t believe my ears and was a little worried that it was going to be so expensive but no sooner had I gone out for a ride in the village with my Mum & Brother than I had a custom wheelchair ordered and the process of building my very own wheel chair was underway.

Paul said he would contact the supplier and get them to send the chair he suggested, he would then bring it out to me and take notes of the lenght of seat and the lenght of foot plates, height of handles, position of wheels, length of backrest ect ect, and that would then go back to the supply where a chair would be custom made in the colour I wanted and particular type of wheelchair, It all happened so quickly… i was so excited and one week later Paul came out with a sample chair to get all the relivant measurements. An email was sent to my Mum for a deposit, but Mum being Mum paid the whole  amount she did not want anything to delay the special gift she so wanted me to have. With measurements in hand my chair was ordered, the lead time was 2-3 weeks, and i couldn’t  wait, we also had extra brakes put on the back so when my husband wheels me around he can control the brakes….

Its here my lovely red wheelchair…Paul arrived from the company I brought it from delivered and set it up, lowered foot rests, raised arm rests and straighted back rest, it’s so easy to maneuver I was even able to propel myself in the lounge on carpet, and my husband was pleased as the handles. had been extended as requested and extra brakes were added so he could control the chair when he wheels me. The red is so me, the first time I go out in it I will have to wear my high heeled red shoes and paint my nails red to match.

I am so pleased with the company that has been so professional and helpful I will recommend them to anyone in Essex who want an  excellent products and top quality service. The  company name is Easy Mobility Services
email: web: if you do contact them just mention me the women with the red wheelchair , they are also helping with a quote for an electric bed, this quote is now with my local MS Society to see if funding is available, keep your fingers crossed for me. I’ll let you know what happens.

This morning I christened my new RED wheelchair “ZIPPY” I thought this name was particularly appropriate because I intent to zipp around from A to B, hopefully safety and of course in absolute style thanks to my new Zippy Red Wheelchair. Of course I will be able to wear my highest heel now…

red shoesI think theses will match quite well.

Thanks so much to my Mum. I really love it.  Thanks to my Brother for suggesting it  and of course to Paul. I feel very lucky to have Zippy … she will make the world of difference to my life.

And a  thank you for all my lovely readers for coming back and reading this post about my new red wheelchair. 

Keep safe AL

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