My newly acquired MS bladder did not come with a control valve.

My newly acquired MS bladder did not come with a control valve.

No control Bladder copy

My newly acquired MS bladder did not come with a control valve.It was July 2013 I was still working, driving and using a walking stick, couldn’t wear my lovely high heals as I would wobble and look as though I was pissed. So the only way to add a bit of individuality was to match my outfits with different coloured sticks and scarves…

I received a letter from my local hospital and was made an appointment to visit an MS nurse, she I must say has been a Godsend, she talked me though want my needs were, and what was available to me medically.

One of my symptoms was bladder urgency (when I needed to go; I had to go then and there! But my newly acquired MS bladder did not come with a control valve). Needless to say I had many embarrassing accidents, which resulted in my decision to start using incontinent pads. My new undergarment accessories were initially fairly small, but my missing bladder control valve eventually led to me having to use the nighttime pad size, which I bought in bulk on line.

I started on a course of medication for my bladder urgency, as well as pain relief but each tablet had certain side effect but I had to weigh up the benefits against those side effects. Well! 18months later and many changes to my medication we seem to had got it right, at long last I’m out of pain, how long for not sure but will enjoy it while I can. It was also suggested that I take some extra vitamins such as Evening Primrose oil, Fish Oil, vitamin D, zinc and Vitamin B12, which I take. Some of the side effects of the other medication include constipation, weight gain and oedema (Swelling of my knees) to name a few.

My MS team also held a course one night each week for 5 weeks that was for sufferers and careers, which was very informative. But after that I was on my own, I being the person I am was not ready to sit back and carry on without knowing what was out there so off I went iPad in hand.

I first joined the MS society and the on line Forma that I found was very useful, but I still didn’t find the answers to my questions. I made a list of all that was out there available and posted that list on the Forma, I got a lot of thanks as some people were not aware of some things out there for instance list below.

  • Radar Key (opens every disabled toilet in the UK)
  • Radar Card (show to shop keepers if you need to use the staff toilets urgently, explains you have MS
  • Blue Badge (get from your council)
  • PIP (personal independent payment)..
  • Access to Work (call your local DWP office)

My newly acquired MS bladder did not come with a control valve.



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