MS Updates!

MS Update!MS Updates! –  Just a little update about progress on my Ankle pin, Suprapubic catheter, Electric bed, Weight loss, Facial hair and possible Weekend away

Ankle Pin

ANKLE PIN : I have been to see a consultant about the pin in my ankle… the one that has been in there for a year now. By the way he is a different consultant than the one that I first saw who told me the reason I broke the leg and ankle was because I was too fat!
##**!!? this is polite code for : I don’t like you very much at all!!!

On a more positive note, My new guy is very pleasant and informative and took the time to explain the pros & cons of what I could expect if I had the screw removed; or if it is left well along. He said there is no guarantee that I would get any more movement or feeling in the ankle if the screw is removed. The reason for this being that my MS has more to do with the decrease in sensation and mobility… however he did promised to have his screw driver at the ready if at anytime in the future I decide I want to have the pin taken out. Much nicer man and we both had a good laugh… on that note we decided to leave the pin well alone and left him and his trusty screw driver for the next patient to consider.

Suprapubic CatheterSuprapubic Catheter: I called the Urologist office and asked his secretary if she could give me any idea when I could expect a date for the operation. I also asked her to update my records and told her that my cholesterol was down from 7.5 to 3.4 so I am no longer in the high category as indicated in the letter I received. I also have a general anesthetic a year ago when my leg and ankle was operated on and have lost 2 stone since that operation…even though I do need to loose more. I just wanted her to update the records to show that I am definitely trying to lose weight. It is a long and hard job because I cannot move very easily and can’t do any, exercises which is recommended when trying to lose weight.

She said that she would update my records and that it was just a matter of waiting to hear from the Anesthetic to book me in. It looks like the next available date will be 19th October, but she could not confirm anything but said she will send a letter when she hears. Second one-off the list… well at least the call to the secretary I can’t take it off the list completely until I have a date, but progress being made. Read more…

 Electric Bed


Electric bed:  All letters and paperwork are with the MS Society waiting a decision…so nothing to report or discuss on this one yet.

Weight Loss

Weight loss: Two stone down… I have seen a Dietitian and she confirmed that I am doing all the right things. She also added that in some ways I’m fighting a losing battle because the medication I’m on is making it so much harder…She suggested I try to cut down on the portion sizes. I am on a no carbohydrate diet which she say is not really a good idea, she said I need to add some carbs even small amounts of brown rice or brown pasta, another appointment arrange for November.

Facial Hair

Facial hair: I recently purchase one of those well know and well advertised hair removal gadgets… I haven’t named it yet because I have only just started using it… so far does what it says but don’t know how long it will take to removal the hair and stop any re growth. I will let you know how it goes. Read more at: hppt://

Weekend Away
Weekend away:
This one is a bit of a sore point… my husband is desperate to go away to a hotel somewhere in the country; one that doesn’t cost a lot and is wheelchair friendly. I, on the other hand would rather wait until I hear about the date for the operation. He says that if we wait till then it will be bloody cold and miserable weather and I can see his point but I don’t really want to go away until I get this catheter done.

The thought of going away and wearing this blasted leg bags, not being able to wear trousers in the colder weather doesn’t appeal to me at all and quite honestly I’m also not sure about going away…I know it’s silly but at least when I am at home I’m not self conscious… How can I explain? Here I get up and I know what I have to do to get ready, I know where everything is, I know I can eat breakfast, lunch and diner at my own pace, and if necessary it’s cut up before I get it… eating in front of others concerns me and going out for the day needing to empty my leg bag and being able to find a toilet, accessing shops, restaurants, café, also the added worry of fatigue hitting me in the afternoons, what to do after diner if we eat at the restaurant, going into the bar there and again needing the toilet.

I don’t know… I think it’s probably easier and cheaper to stay at home. No doubt there will be more to come on this subject, It may be an idea… not just for a break but also to do some research for the blog and I could report on accessibility etc which could be and interesting topic for a new post. In that respect it could be worth it so I will keep you posted, until next time…

Lesion-generated mistakes P S – Before  I go I would like to tell you about my recent run-in with my darling editor/sister… I have been scolded for being too eager and publishing my last post… Wheelchair access. I was home alone for the day because my hubby was out playing golf with a friend, I was feeling a little bored so decided to press the PUBLISH button to my post… however I broke strict protocol and the post had not been fully checked for “lesion-generated spelling mistakes”… Apologies go out to all my lovely users – I have now promised not to press the Publish button on future posts until  all “lesion-generated mistakes” have been checked by bossy boots editor. 🙂

Well there are a few things ticked off my list, I hope you enjoyed reading my MS Updates

All the best AL



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