MS Locked me Out Of My Cyber Space World…

 

MS Locked me Out of Cyber Space

I am very relieved to say that I am back… after MS locked me out of my Cyber Space world. I have been away from a couple of days, not on holiday again but away from communication… I have been locked out of my Cyber Space world because I lost my connection from my computer, actually from my blog…I got brain freeze; well that’s my excuse. I lost the ability to connect which put me in a real panic, especially as I couldn’t get hold of my sister, who is not only my editor but my right hand man/woman when it comes to sorting out problems.  Unfortunately she’s been unwell and has had to wear a neck brace because she damaged her neck (probably by sitting at a computer most of the night trying to help me out). She has probably over done things a little.

Look after your neck

Neck brace 

She recently returned to the workforce after 12 years looking after her son and managing the bookkeeping and office admin for her husbands engineering business… at 52 years young she decided to study for a certificate in Aged & community Care and is now a Personal Care Assistant working for a private agency caring for people in their own homes.

CRASH

Bicycle Crash

To add more drama to the situation her son also had an altercation with a bicycle and went flying over the handle bars when the chain came off.  He apparently went skidded across the ground on his face so has cuts and bruises over his face and most of his body… Being a teenage it was obviously not his fault … the chain broke so it was the bikes fault… And the fact that he was not wearing a helmet has nothing to do with the massive grazes on his face. But brave solider is still going to school (secretly I think it may be to get some sympathy from a certain young lady who he has become friends with as she takes the same train to school with him each morning).

Anyway my sister has had her own problems to deal with but I would like to tell you about a conversation we had last night, which I believe is an important topic to discuss…She said that having this problem with her neck was very painful and that she could not lay down to go to sleep – A trapped nerve in one of the vertebra in her neck which had subsequently sent the muscles at the base of her skull in to painful spasms. She started to tell me about how much pain she has been in… but then stopped and said “ well that is probably nothing compared to your constant issues”.

Well I made a packed with my sister a long time ago that we would stop saying sorry to each other… Last night we made another packed… and that was to agree that it is ok to talk about your problems as well.

carol-mike-werner-person-outdoors-under-a-tree-sitting-in-a-wheelchair

Person Outdoors under a Tree Sitting in a Wheelchair

I love this image by: Carol & Mike Werner Item #: 9009244  found at http://www.allposters.com/-sp/Person-Outdoors-under-a-Tree-Sitting-in-a-Wheelchair-Posters_i9009244_.htm

MS Locked me out of the everyday world

The image visually describes how it is to be locked out of the everyday world when you’re in a wheel chair…And this brings me to another topic which I would like to talk about! I believe that this is a regular issue for people who have a disability or chronic pain…sometimes people find it difficult or maybe “selfish” to talk about their own health of pain issues when they are talking to someone with a disability or chronic pain. Even close friends or family members sometimes feel that it is wrong to discuss their personal stuff…Please don’t think that the whole world revolves around our personal stuff and please do talk to us as you would talk to anyone else. No matter how well-meaning your reasons are… excluding us from your own issues just makes us feel more isolated and in turn just gives us even more reason to focus on our own issues… We are all normal people and sharing normal everyday conversations with friends and family means we can remain as normal as everyone else… Also knowing that you are hurting or upset or have worries as well… and in turn sharing those thoughts and feelings with us helps normalize our worlds. Does that make sense? I hope so… I don’t quite know how to explain it but In short it is important not to feel that our issues should stop you sharing your own issues. It’s a little like being locked out of my cyber space world… by not sharing your real feelings with your disabled friends your may be unknowingly locking them out of part of your world.

Dastardly lesions

Anyway getting back to the original story line…I did finally get to speak to my sister this morning/evening in Australia and she managed to put me right… she guided me step by step through the log in process so I was able to get back in to my blog page. I think that these “dastardly lesions,” were playing games in my brain again… and in the confusion I was trying to log in with the completely wrong details. Oh well I am back now and feeling a lot less stressed. This blogging has been a Godsend in my world and being locked out of that new world for the past few days has been very hard for me.

Anyway… One big problem resolved thank goodness but there is another problem with the comments and feedback so just give me a few days to sort this issue out with my sister/editor and then you will be able to send your comments/Feedbacks to me again… I have been a little concerned lately because the connection to this area of my blog does not seems to be working and it means a lot to me to read your comments and know what you all think so I need to get this sorted out ASAP. I hope you enjoyed reading about me being MS locked me out of my Cyber Space world. Please feel free to comment in the box below, or for more posts go to www.amazon-lady.com

 

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