How was your Christmas?

Happy new year to you all.

How was your Christmas? Did it all go well, were there any hiccups? Mine went really well, even without my family who live in Australia, anyway a good time was had by my husband and I,our son who is 26 and lives in London came to spend the week with was, which was great. Christmas Eve they wheeled me down to the local pub where I had a great time, even without drink (gave that up Christmas 2013) but didn’t need drink to enjoy the night. David and my son both behave themselves, didn’t drink too much, they were able to wheel me back home at a reasonable hour.

Christmas day arrived and because the boys had prepared the veg and Turkey and all the trimmings in advance, all they had to do was turn on the oven. I let them go down the pub on their own for the traditional Christmas Day pint. Food was delicious, we decided to eat a bit later than normal, so sat down at 4pm.

SPC(Suprapubic Catheter)

Now the update on my SPC (Suprapubic Catheter) I think I told you about the blisters I developed shortly after the operation, we started by changing the dressings and had a blood tests to confirm no infection, I changed the SPC for a non latex version, but after all these changes months later the blisters have cleared up all by themselves, so the conclusion was that it’s the self adhesive dressings, so now use melolin pads and surgical tape, which works well. I have now a different problem, when the nurse changed my SPC which just happened to be the non latex version, either the tube didn’t go down far enough into the bladder, or went to one side, the only way I can describe it if you look at the bladder as a small inflated balloon, and the SPC as a straw, it feels as if the straw has gone down one side on the balloon and not to the bottom straight, hope you understand what I’m trying to say, the effect of this means my bladder never feels completely empty, most of the time I feel that I need go to the toilet, so I’m constantly wet as I can’t get to the toilet quickly or easily, I will call the nurse to come out.

Stem Cell Treatment 

Stem cell

I was interested to see on TV Monday night a Panorama program were they showed that RRMS could be helped with stem cells treatment, they treat a person with RRMS with a cancer drug chemotherapy which kills of the bad cells in the body, then they take out some good cells and freeze them until after a period of time when the body is able to have the good cells placed back in they body, defrosted of cause, they then grow and form new cells which repair slowly the lesions in the body. That is how I understand it, simplified I know but hopefully you get it. I realise it only helps people with RRMS so I’m not in the group of people that can be helped AT THE MOMENT but how fantastic that this is possible, if you haven’t seen this program yet that a look on iPlayer or follow the links at https://www.mssociety.org.uk/ms-news/2016/01/ms-treatment-feature-panorama

Little Giggle

Belly Button

(wish my tummy looked like the above)

Just to add a bit of a laugh, while my husband was changing my dressing this evening, I noticed a scar on my stomach and said is this one of those blisters healing, and he said silly cow that’s your belly button, oh I said silly me but I haven’t seen that for such a long while it’s not surprising I mistook it for something else, still it means I’m losing weight if I can see that now. Though you might like to have a little giggle at that!

Change in the weather

 

cold_weatherWe had suck great weather in December, record temperatures and Christmas I believe was the warmest Christmas Day on record. I am aware that a lot of people suffered from water damage when heavy rain caused flooding, I do hope this year will be better for those that were affected. But know the weather is the temperature it normally is at this time of the year (BLOODY COLD). Heating has been put up in this house, fur blanket (not real fur) and pashmina wrap on, but still cold, my extremities are freezing, that is due to my damaged nerve endings I suppose, well what ever the course I can’t change it now no matter what I do, and believe me I have tried everything other that putting my feet in a fire (which I don’t recommend) but that wouldn’t make any difference, so just have to do the best I can and live with it.

Looking forward

foreward

I think at this time of year to have something to look forward too a holiday is a good idea, we would love to visit my family in Australia but unfortunately that’s out of our reach, but a weekend in Europe is more in our price range, one of the country’s we haven’t been to is Poland, it’s only a couple of hours by plane and not too expensive. We will have to see if we can find a few pounds to put away each month to afford a weekend away. It would be the first time flying since my diagnosis and using a wheelchair, so will be a good trial to see how easy or not it would be to travel further a field, for instance to Australia, I realise the distance is not quite the same and we would probably need to travel business class if we did go to Australia for the leg room if nothing else, but at nearly £5000 a ticket unless we win the lottery that’s completely out of the question, my ESA and PIP don’t stretch that far.

I hope you enjoyed reading this post? Is so please do send the details to any friends or family, it would be nice to get to others that might enjoy the read.

Happy New year

All the best for now AL

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