How my life has changed since being diagnosed.

How life has changedHow my life has changed since being diagnosed

I find it hard to believe that it was July 2013 that I was given the diagnosis that I have Secondary Progressive Multiple Sclerosis, that was just over two years ago, but it seems a life time ago, so much has changed for both my family and I, it’s hard to remember what I was actually like before I received the eventual diagnosis, although it was only a relatively short time ago. It’s like those videotapes that are sometimes used where a person is standing still, and everyone and every thing around them is rushing past at such a speed that the surrounding appears blurred…. That is how I feel when I try to look back and remember. I am still the same person but different, I know that seems a strange thing to say but it is true.

I was an adult then at 53 with a job responsibilities and a relatively normal life, but now I feel like I have stepped backwards in life and I feel like a child again. My MS means that I need almost everything done for me.
The hardest thing I have found since the day I was diagnosed back in 2013 is that things changed so fast… one day I had so-called normality and then the next my life became completely detached from any semblance of normality just like that in the blink of an eye. It was like falling off a cliff in slow motion, each day something else would happen to change me, not so noticeable that I or others would see, but when I look back at it now what a transformation, it’s like a child’s development in reverse.

Adult to child

  • A child learns to walk – I stopped walking
  • A child learns to come out of nappies – I have gone into them (well not quite but near enough)
  • A child learns to cut up his or her own food – I have to get someone to do that for me now.
  • A child learns to dress itself – I have to get my husband to dress and undress me.

I realise that my comments may sound quite negative and depressing, but I think that sometimes we all have to be honest and face the real world for what it really is (not always easy).
I never wanted to write or look at the world through rose-tinted glasses and because of that I think I owe it to people to tell it, as it is, “warts and all”. Yes of cause I have good days… but there are bad days too and I try very hard to the scales unbalanced and make more good day than bad.

Writing this blog has helped me more than I can say… and the comments I have received have lifted my spirits and helped motivated me, my users comments have become a very big part of my daily life. I have enjoyed telling people about many humorous events that I have encountered and I have managed to educated myself and passed on all sorts of useful information to other people relating to this debilitating disease… I hope i have helped someone out there.

Along my journey I have met some wonderfully supportive and professional people … Doctors, Consultants, Nurses, Physiotherapy, Neurologists, Urologist as well as many others, they have all helped me in one way or another. I have either acquired or purchased endless equipment … raised toilet seats, grab rails, perching stools, shower stool, walking frames, Rollator, grab sticks, stair lift, blue badge, wheelchairs, catheter’s (far too many) and electric bed and a raise and recycle chair, that’s a hell of a list… and I am sure I have missed out a few.  Anyway they all help me in some way or another to make my day easier or more comfortable.

I was only saying to my Husband the other day, thank goodness we have been to some wonderful places over the last 30 years. Some of the places we could obviously still visit, but we would need a lot more planning these days. However we have been very lucky to have had lots of long  weekend breaks over the years, mainly in March which is our anniversary and my husbands birthday , and again in October which is my birthday. We have traveled and explored cities for weekends and sometimes longer we have traveled to Europe, Rome, Florence, Paris, Bruges, Monte Carlo, Amsterdam, Germany, Ibiza, and further afield – Australia and have also visited most of the cities in the UK.

We  had some fabulous holidays in our tent and later in our caravan, with a couple that were close friends until she past away a few years ago from breast cancer. They also had a caravan, and while our husbands enjoyed fishing my friend and I would enjoy the sun, peace and quite plus a bottle or three of wine. Those days were so much fun, and I now have some lovely memories that I will forever cherish.

I do miss her so much… we were so very close and she was there by my side every step of the way until she passed away. We talked for hours and hours and researched many different avenues trying to put all the pieces together and come up with the answer for all the health issues I was having back then … we both had wondered if I may have had MS … well we were right! If only I could tell her that… it would be so very lovely to sit and chat with you again my dear friend I do miss you so very much.

Well I think that is enough of me feeling all sad and nostalgic for today. I do hope you enjoyed this post How my life has changed since being diagnosed.

Bye for now AL.

How my life has changed since being diagnosed.



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