How my life has changed since being diagnosed.

How life has changedHow my life has changed since being diagnosed

I find it hard to believe that it was July 2013 that I was given the diagnosis that I have Secondary Progressive Multiple Sclerosis, that was just over two years ago, but it seems a life time ago, so much has changed for both my family and I, it’s hard to remember what I was actually like before I received the eventual diagnosis, although it was only a relatively short time ago. It’s like those videotapes that are sometimes used where a person is standing still, and everyone and every thing around them is rushing past at such a speed that the surrounding appears blurred…. That is how I feel when I try to look back and remember. I am still the same person but different, I know that seems a strange thing to say but it is true.

I was an adult then at 53 with a job responsibilities and a relatively normal life, but now I feel like I have stepped backwards in life and I feel like a child again. My MS means that I need almost everything done for me.
The hardest thing I have found since the day I was diagnosed back in 2013 is that things changed so fast… one day I had so-called normality and then the next my life became completely detached from any semblance of normality just like that in the blink of an eye. It was like falling off a cliff in slow motion, each day something else would happen to change me, not so noticeable that I or others would see, but when I look back at it now what a transformation, it’s like a child’s development in reverse.

Adult to child

  • A child learns to walk – I stopped walking
  • A child learns to come out of nappies – I have gone into them (well not quite but near enough)
  • A child learns to cut up his or her own food – I have to get someone to do that for me now.
  • A child learns to dress itself – I have to get my husband to dress and undress me.

I realise that my comments may sound quite negative and depressing, but I think that sometimes we all have to be honest and face the real world for what it really is (not always easy).
I never wanted to write or look at the world through rose-tinted glasses and because of that I think I owe it to people to tell it, as it is, “warts and all”. Yes of cause I have good days… but there are bad days too and I try very hard to the scales unbalanced and make more good day than bad.

Writing this blog has helped me more than I can say… and the comments I have received have lifted my spirits and helped motivated me, my users comments have become a very big part of my daily life. I have enjoyed telling people about many humorous events that I have encountered and I have managed to educated myself and passed on all sorts of useful information to other people relating to this debilitating disease… I hope i have helped someone out there.

Along my journey I have met some wonderfully supportive and professional people … Doctors, Consultants, Nurses, Physiotherapy, Neurologists, Urologist as well as many others, they have all helped me in one way or another. I have either acquired or purchased endless equipment … raised toilet seats, grab rails, perching stools, shower stool, walking frames, Rollator, grab sticks, stair lift, blue badge, wheelchairs, catheter’s (far too many) and electric bed and a raise and recycle chair, that’s a hell of a list… and I am sure I have missed out a few.  Anyway they all help me in some way or another to make my day easier or more comfortable.

I was only saying to my Husband the other day, thank goodness we have been to some wonderful places over the last 30 years. Some of the places we could obviously still visit, but we would need a lot more planning these days. However we have been very lucky to have had lots of long  weekend breaks over the years, mainly in March which is our anniversary and my husbands birthday , and again in October which is my birthday. We have traveled and explored cities for weekends and sometimes longer we have traveled to Europe, Rome, Florence, Paris, Bruges, Monte Carlo, Amsterdam, Germany, Ibiza, and further afield – Australia and have also visited most of the cities in the UK.

We  had some fabulous holidays in our tent and later in our caravan, with a couple that were close friends until she past away a few years ago from breast cancer. They also had a caravan, and while our husbands enjoyed fishing my friend and I would enjoy the sun, peace and quite plus a bottle or three of wine. Those days were so much fun, and I now have some lovely memories that I will forever cherish.

I do miss her so much… we were so very close and she was there by my side every step of the way until she passed away. We talked for hours and hours and researched many different avenues trying to put all the pieces together and come up with the answer for all the health issues I was having back then … we both had wondered if I may have had MS … well we were right! If only I could tell her that… it would be so very lovely to sit and chat with you again my dear friend I do miss you so very much.

Well I think that is enough of me feeling all sad and nostalgic for today. I do hope you enjoyed this post How my life has changed since being diagnosed.

Bye for now AL.

How my life has changed since being diagnosed.

 

 

59 replies
  1. Home Page
    Home Page says:

    Hello! I could have sworn I’ve visited this site before but after looking at a few of the articles I realized it’s new to me. Regardless, I’m certainly happy I found it and I’ll be book-marking it and checking back regularly!|

    Reply
  2. breaking news
    breaking news says:

    I think this is among the most vital info for me. And i’m glad reading your article. But want to remark on some general things, The website style is great, the articles is really nice : D. Good job, cheers|

    Reply
  3. great site
    great site says:

    Its like you read my thoughts! You seem to know a lot approximately this, like you wrote the guide in it or something. I feel that you could do with some percent to pressure the message house a bit, however instead of that, that is excellent blog. A fantastic read. I’ll certainly be back.|

    Reply
  4. mouse click the following post
    mouse click the following post says:

    Oh my goodness! Impressive article dude! Many thanks, However I am experiencing troubles with your RSS. I don’t know why I can’t subscribe to it. Is there anyone else getting similar RSS problems? Anybody who knows the answer can you kindly respond? Thanks!!|

    Reply
  5. This Web page
    This Web page says:

    Wonderful website you have here but I was curious if you knew of any message boards that cover the same topics talked about in this article? I’d really like to be a part of community where I can get opinions from other experienced individuals that share the same interest. If you have any recommendations, please let me know. Thanks a lot!|

    Reply
  6. resources
    resources says:

    I really like your blog.. very nice colors & theme. Did you create this website yourself or did you hire someone to do it for you? Plz respond as I’m looking to design my own blog and would like to find out where u got this from. thanks|

    Reply
  7. Resource
    Resource says:

    I’m really enjoying the design and layout of your blog. It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit more often. Did you hire out a developer to create your theme? Great work!|

    Reply
  8. other
    other says:

    I’m really inspired with your writing abilities as smartly as with the structure to your weblog. Is that this a paid theme or did you customize it your self? Anyway keep up the excellent quality writing, it is uncommon to look a great blog like this one these days..|

    Reply
  9. relevant web-site
    relevant web-site says:

    I’m extremely impressed with your writing abilities as neatly as with the format in your blog. Is that this a paid topic or did you customize it yourself? Either way stay up the excellent quality writing, it’s rare to peer a great weblog like this one these days..|

    Reply
  10. simply click the up coming site
    simply click the up coming site says:

    I am extremely inspired together with your writing abilities and also with the structure in your weblog. Is that this a paid subject or did you modify it your self? Anyway stay up the excellent quality writing, it is uncommon to look a great weblog like this one today..|

    Reply
  11. his comment is here
    his comment is here says:

    Howdy are using WordPress for your blog platform? I’m new to the blog world but I’m trying to get started and create my own. Do you require any coding knowledge to make your own blog? Any help would be greatly appreciated!|

    Reply
  12. i loved this
    i loved this says:

    This is the perfect site for anyone who wants to understand this topic. You realize so much its almost tough to argue with you (not that I personally would want to…HaHa). You definitely put a fresh spin on a topic that’s been written about for years. Excellent stuff, just excellent!|

    Reply
  13. Our Home Page
    Our Home Page says:

    Great post. I was checking continuously this blog and I’m impressed! Extremely useful info specially the last part 🙂 I care for such information a lot. I was looking for this certain info for a long time. Thank you and good luck.|

    Reply
  14. Dan
    Dan says:

    I enjoy what you guys are up too. This type of clever work and reporting!
    Keep up the excellent works guys I’ve you guys to my own blogroll.

    Reply
  15. Lonna Reisenauer
    Lonna Reisenauer says:

    Do you mind if I quote a few of your posts as long as I provide credit and sources back to your weblog? My blog is in the exact same niche as yours and my visitors would definitely benefit from a lot of the information you provide here. Please let me know if this alright with you. Many thanks!

    Reply
  16. Elicia Hoeger
    Elicia Hoeger says:

    Hello there! This is my first visit to your blog! We are a team of volunteers and starting a new project in a community in the same niche. Your blog provided us valuable information to work on. You have done a extraordinary job!

    Reply
  17. Ike Difrancesco
    Ike Difrancesco says:

    This is the best blog for anybody who wants to find out about this topic. You notice a lot its virtually laborious to argue with you (not that I actually would want…HaHa). You definitely put a brand new spin on a subject thats been written about for years. Nice stuff, just great!

    Reply
  18. Will Scarberry
    Will Scarberry says:

    you’re really a good webmaster. The site loading speed is amazing. It seems that you are doing any unique trick. In addition, The contents are masterwork. you have done a excellent job on this topic!

    Reply
  19. Mercedez Akin
    Mercedez Akin says:

    I really like your blog.. very nice colors & theme. Did you design this website yourself or did you hire someone to do it for you? Plz answer back as I’m looking to design my own blog and would like to find out where u got this from. thanks

    Reply

Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *