How MS affects my day


To day I thought I would write a post about  how MS affects my day… It might make an interesting read to tell everyone what it takes to get me through the day, starting from first thing in the morning ; the help I need and get from my Husband and the tools and equipment I couldn’t do without.

First thing in the morning, my husband gets my walker (Zimmer frame) and I use the grab rail by my side of the bed, on the wall to pull myself to my feet, I need help to get to the Zimmer frame (my walker) and then I get into our on-suite, and either take a shower; with hubby’s help to get me in and sit on my shower chair.  Holding on to the grab rails wash my hair and body, he helps me out and he gets the chair out, while I stand and hold the grab rail. I  then very gingerly step over the lip of the shower base whilst holding on to him and then get out sit on chair and he helps me get dry, or on those days I don’t shower (it does take a lot out of me), I have a strip wash while siting on the toilet which has a seat raiser, and pull down grab rail, we are lucky that the sink is next to the toilet,  so I can reach the sink while sitting on the loo.

Once dry and with the walker and grab rail manage to get up, I get back to our bed, where my hubby picks some cloths and helps me to get dressed, I brush my hair and use the walker to get to the top of the stairs where I sit on the stair lift… I named him “Mario” because  after going round the corner of our stairs slowly, he speeds up on the straight, and then starts slowing down again at the bottom round the banisters to the ground.  Hubby gets my walker ready and I use the grab rail , and he helps me to my feet, I walk with the roller to my raise & recline chair where I sit and lower the chair, turn on the air cushion pull over my “over the chair table” and hubby brings my breakfast;. Normally I have a small bowl of muesli, coffee and water bottle to take my first load of tablets, 7 in all.

Daily Equipment

After breakfast I put my makeup on do my hair then I’m ready for the day. By then I’m exhausted but check my emails, and blog to see if I have to reply to anyone. I spend a couple of hours writing my next new post and I then email this to my Editor, who is my younger sister in Australia. She checks it out and adds her artistic flair in the form of diagrams, pictures or photos;  she has a back ground in graphic design and does a fantastic job, her input  bring my posts to life and she has a funny way of choosing exactly the right image to describe my feelings in a picture format. We are a great team really.

When she is happy with what she has done she then emails the post back to me and I check again that I’m happy… when we are happy that all is as good as possible  she presses the button and launches my post into cyberspace for you all to read…it’s a lot of work but so worth while, and by reading your lovely comments I believe you think so too.

I would like to take this opportunity to thank all of you who have sent me your comments. The blog has become such a big part of my life and I’m not sure what I would do without it.  I have been fortunate as recently a couple of International  MS Society have seen my blog, and have ask me to be a monthly guest writer, so that takes up a few more hours a month, many people seem to enjoy what I write, which has come as a great surprise to me, because most of my life I have been told that I was no good at writing.

I know my spelling has improved with the help of spell check, but my punctuation hasn’t, that certainly one of the important jobs my Editor does for me, adding punctuation to my articles… She (my Sister) explained this to me the other day –  she said that when I write I need to breath… and every time I take a breath I need to use some kind of punctuation 🙂 the vision of her reading my 700-900 word posts without a breathing spot made me laugh and I can just see her sitting there all red-faced  and gasping for breath after reading my posts with no punctuation :-). Anyway I think my writing has improved and my Husband says the more I write the better I get.

Thank you Darling, praise indeed coming from you.

Amazon Lady Global Meeting

About twice a week I call my sister and we catch up and have a good natter… the Amazon-Lady Global meeting. I also call my Mum on a weekly basis just to check how she’s going. As my regular readers would know all my family live in Australia. My mum has started line dancing classes and goes to the  gym three times a week plus daily walks, she also works once a week as a volunteer at her local library   at 78  she has a very healthy and active life style and I I’m very proud of her.

By the time I’ve done all that I need to empty my leg bag, so a trip to the loo is on the cards, so off I go with my Rollator, being careful not to fall,  and its normally lunch time by then and time for more tablets as the first lot have now worn off. Well that’s a typical morning for me. Time for lunch, what does the afternoon/evening hold? Hope you enjoyed reading about How MS affects my day.

Until next time… bye for now AL

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