How are you coping with MS?

How are you coping with MS?

I wrote about MS in some detail last year, but wanted to go there again as a lot of you have read and commented on the post, so through an update was due.

MS is a complex and complicated condition, from Relapsed and Remittances Multiple Sclerosis (RRMS) Secondary Progressive Multiple Sclerosis (SPMS) Primary Progressive Multiple Sclerosis (PPMS) and all those in between. So as you can see the variety and verity is quite enormous, I personally have SPMS, but since I was first diagnosed in 2013 my Progression has speeded up quite rapidly, I have gone from working, walking, driving and for filling a useful role as a mother and wife, able to do many things that just had to be done, like house work, washing clothes, plus many others that I really enjoyed such as gardening and my passion cooking and baking, sadly none of which I now can do as my mobility has gone to pot and I’m not safe in the kitchen any longer.  so today I’m the old woman sitting in the chair and my dear husband at 63 has had to take over the household tasks, as well as caring for me.

I was interested to see on tv the other night I think it was a Panorama item were they showed that RRMS could be helped with stem cells, they treat a person with RRMS with a cancer drug chemotherapy which kills off the bad cells in the body, before killing off all their cells they take out some good cells and freeze them, until after a period of time when the body is able to have the good cells placed back in they body, defrosted of cause, they then grow and form new cells which repair slowly the lesions in the body. That is how I understand it, simplified I know but hopefully you get it. I realise it only helps people with RRMS so I’m not in the group of people who can be helped AT THE MOMENT but how fantastic that this is possible, if you haven’t seen this program yet try to get  a look on iPlayer.


I thought I would give you an up date on the equipment I have at home to assist me, first the stair light that’s working well so no problems there, the only thing that worries me is even though the council paid for the stair lift and installation they don’t pay for the maintenance which is £600 a year, we obviously can’t afford that, so after the first year manufacturers guarantee which runs out in September don’t know what we will do if the thing goes wrong then, well we will just have to hope nothing goes wrong.


I was so looking forward to getting the electric bed, when it arrived and was assembled it looked fabulous, two separate beds in one base so to anyone looked like a super king size bed the same as the bed we had before, we had to buy single sheets which I purchased I bought fitted sheets as I thought these would work better what with my bed able to change position i.e. head, middle and legs could be raised, but as it happens it would have been better to get flat sheets as each time I move my bed the sheet pings off the bed and my husbands sheet moves when my bed moves, well we had no idea had to try it out first so will try out our flat super King size bed sheet before we invest in new sheets, we still use our super King size duvet that works well, thank goodness we didn’t have to buy single duvet. The other worry is every time I move the bed make one hell of a noise like the slates are breaking, David has checked and the slats are still there no damage(at the moment) I’m just waiting for them to break, David said well if it breaks they will have to replace it, but the thought of the bed breaking during the night and me going through the slats doesn’t bear thinking about. Will have to call them and get someone round to investigate, I think the worry I have is that they will say I’m too heavy and didn’t tell the truth about how heavy I was when we orders the bed.


These do need clean as you need to clean the toilet under the seat, very surprised how dirty the underneath of the seat gets, The only way I’ve found to clean and sanitizer it probably is to put it in the shower tray with a good amount of bleach and leave over night, my husband in the morning sprays the bleach off with the shower head, that cleans them really well, they do need drying with a towel but they come up really clean and smell much better, I can then clean the toilet from my wheelchair while the bleach does its job. The only down side I’ve found is the bleach seems to weaken the hook that sits on the front of the toilet stopping the seat slipping back on the toilet and it does squeak, not sure if it’s the plastic or metal, I expect it’s the plastic which looks as though it has a fine crack in it.


My lovely red wheelchair I’ve named Zippy had a bit of a problem, I found it very difficult to turn corners when wheeling myself, David also noticed and said in his normal forthright way, (they will have to come and bloody fix that) which of cause they did. Great service came out the next day and fixed the problem, they didn’t even ask what the problem was, but my husband was there with the service guy, he does love a chat bless him. So that’s the latest so far, will keep you updates.

Lots more to tell you but think 1000 words is enough for this blog, keep well and sign up to my email by adding your email address, plus please do pass on the site details to friends and family, and add me to your social media accounts. All the best AL
P.S. Some have asked for my email:


174 replies
  1. infosmag
    infosmag says:

    I’m impressed, I have to admit. Rarely do I encounter a blog that’s both educative and amusing, and without a doubt,
    you have hit the nail on the head. The problem is something that not enough men and
    women are speaking intelligently about. Now i’m very
    happy that I stumbled across this during my search for something regarding

  2. website
    website says:

    Thanks for the marvelous posting! I seriously enjoyed reading it, you will be a great author.

    I will make sure to bookmark your blog and will come back later in life.
    I want to encourage you continue your great writing, have
    a nice weekend!

  3. Lemmy tribute
    Lemmy tribute says:

    Excellent post. Keep writing such kind of info on your
    page. Im really impressed by your blog.
    Hello there, You’ve done an excellent job. I will definitely digg it and personally suggest to my friends.
    I’m sure they will be benefited from this site.

  4. xxx
    xxx says:

    When someone writes an paragraph he/she maintains
    the image of a user in his/her mind that how a user can be
    aware of it. Thus that’s why this article is perfect.


  5. hz
    hz says:

    I think this is one of the most important info for me.
    And i am glad reading your article. But want to remark on few general things,
    The website style is ideal, the articles is
    really great : D. Good job, cheers

  6. hand to hand combat training near me
    hand to hand combat training near me says:

    Greetings from California! I’m bored to death at work so I decided to browse your site on my iphone
    during lunch break. I really like the info you present here and can’t wait to take a look when I get home.
    I’m shocked at how fast your blog loaded on my mobile ..
    I’m not even using WIFI, just 3G .. Anyways, wonderful site!

  7. law
    law says:

    Definitely believe that which you said. Your favorite reason seemed to be on the internet the simplest
    thing to be aware of. I say to you, I certainly get annoyed while people
    think about worries that they plainly do not know about.
    You managed to hit the nail upon the top and defined out the
    whole thing without having side effect , people
    could take a signal. Will probably be back to get more.

  8. Michale
    Michale says:

    Definitely believe that which you said. Your favorite
    justification appeared to be on the net the simplest thing to be aware of.
    I say to you, I certainly get irked while people think about
    worries that they just do not know about. You managed to hit the nail upon the top and also defined out the whole thing without having side-effects , people can take a signal.
    Will probably be back to get more. Thanks

  9. artworksadv
    artworksadv says:

    I got this site from my friend who informed me regarding this web site and at the moment this time I am browsing this web page and reading very informative articles or reviews here.

  10. pinfaves
    pinfaves says:

    Hello there! This post couldn’t be written any better!
    Looking at this article reminds me of my previous roommate!

    He constantly kept preaching about this. I
    most certainly will forward this information to him.

    Pretty sure he will have a good read. Many thanks for sharing!

  11. dapoxetine 90 mg
    dapoxetine 90 mg says:

    You are so awesome! I don’t believe I have read a
    single thing like this before. So nice to discover another person with some genuine thoughts on this
    subject matter. Seriously.. thanks for starting this up.
    This site is something that’s needed on the internet, someone with a little originality!

  12. oscars live stream
    oscars live stream says:

    Hello! I could have sworn I’ve been to this blog before but after checking through some
    of the post I realized it’s new to me. Anyways, I’m definitely happy I found it and I’ll be book-marking and checking back often!

  13. Online music promotion
    Online music promotion says:

    An impressive share! I have just forwarded this onto a
    friend who has been conducting a little homework on this.

    And he in fact ordered me dinner due to the fact that
    I stumbled upon it for him… lol. So let me reword this….
    Thanks for the meal!! But yeah, thanks for spending time to discuss this matter here
    on your website.

  14. snow goose hunting
    snow goose hunting says:

    Excellent website you have here but I was curious
    if you knew of any discussion boards that cover the
    same topics talked about in this article? I’d really like to be a part of
    online community where I can get feedback from other experienced individuals that
    share the same interest. If you have any suggestions, please
    let me know. Kudos!

  15. How to edit instagram pictures
    How to edit instagram pictures says:

    Excellent post. Keep writing such kind of information on your page.
    Im really impressed by your site.
    Hey there, You have performed an excellent job. I’ll certainly digg it and personally suggest
    to my friends. I’m confident they will be benefited
    from this site.

  16. single
    single says:

    I’m not sure where you’re getting your information, but good topic.
    I needs to spend some time learning more or understanding
    more. Thanks for magnificent info I was looking for this info for my mission.

  17. says:

    I have been exploring for a little bit for any high-quality articles or weblog posts on this kind
    of house . Exploring in Yahoo I eventually stumbled upon this web site.

    Reading this info So i am satisfied to exhibit that I have a very excellent uncanny
    feeling I discovered exactly what I needed. I most without a doubt will make certain to don?t overlook this
    site and provides it a glance regularly.

  18. website design
    website design says:

    This is very attention-grabbing, You are an overly skilled blogger.
    I’ve joined your rss feed and look ahead to in search of
    extra of your great post. Also, I have shared your website
    in my social networks

  19. buy youtube views
    buy youtube views says:

    This design is steller! You definitely know how to keep a reader amused.
    Between your wit and your videos, I was almost moved
    to start my own blog (well, almost…HaHa!) Fantastic job.
    I really loved what you had to say, and more than that, how
    you presented it. Too cool!

  20. westerly life
    westerly life says:

    “I simply could not leave your website prior to suggesting that I actually loved the usual info a person provide on your guests? Is gonna be back steadily in order to investigate cross-check new posts”

  21. out of state movers
    out of state movers says:

    Hi there, I discovered your site by means of Google even as looking for
    a related topic, your website came up, it seems to be good.
    I’ve bookmarked it in my google bookmarks.
    Hi there, simply was alert to your weblog thru Google,
    and located that it is truly informative. I am gonna watch out
    for brussels. I’ll be grateful in case you proceed this in future.
    A lot of folks will likely be benefited from your writing.

  22. uptotop
    uptotop says:

    I have to show my admiration for your kindness in support of those individuals that really want guidance on in this concern. Your personal commitment to passing the solution around was unbelievably powerful and has usually permitted associates like me to achieve their desired goals. Your new valuable suggestions entails a whole lot a person like me and substantially more to my office workers. Thank you; from everyone of us.

  23. reklama
    reklama says:

    Somebody necessarily assist to make critically posts I’d
    state. This is the first time I frequented your website page and so far?
    I surprised with the research you made to create this actual submit extraordinary.

    Great job!

  24. activegroove
    activegroove says:

    You’re so interesting! I do not think I’ve truly read through anything like
    that before. So wonderful to discover someone with genuine thoughts on this subject matter.
    Really.. thanks for starting this up. This web site is something that’s needed on the internet,
    someone with a little originality!

  25. hypnosecoach
    hypnosecoach says:

    “I really like your blog.. very nice colors & theme. Did you make this website yourself or did you hire someone to do it for you? Plz answer back as I’m looking to create my own blog and would like to know where u got this from. kudos”

  26. true religion outlet
    true religion outlet says:

    I precisely needed to thank you so much all over again. I am not sure the things I would have taken care of in the absence of the type of advice documented by you regarding that concern. It has been a real difficult concern for me personally, however , finding out the very skilled style you dealt with that forced me to cry over joy. I’m just happier for your support and trust you realize what a great job you are always doing teaching people today by way of your webblog. Most probably you haven’t met all of us.

  27. ~emery eps
    ~emery eps says:

    I simply hope to inform you that I am new to wordpress blogging and really valued your information. More than likely I am likely to save your blog post . You simply have stunning article material. Admire it for telling with us the best internet report

  28. helpful site
    helpful site says:

    I’m pretty pleased to uncover this page. I want to to thank you for your time for this particularly fantastic read!! I definitely enjoyed every bit of it and i also have you book-marked to check out new information in your blog.

  29. ctesnet
    ctesnet says:

    After looking over a handful of the blog articles
    on your web site, I seriously like your way of writing a blog.
    I book-marked it to my bookmark webpage list and will be checking back in the near future.
    Please check out my web site too and tell me how you feel.

  30. Business Service
    Business Service says:

    Great – I should certainly pronounce, impressed with your site. I had no trouble navigating through all tabs as well as related information ended up being truly simple to do to access. I recently found what I hoped for before you know it in the least. Reasonably unusual. Is likely to appreciate it for those who add forums or something, web site theme . a tones way for your client to communicate. Excellent task.

  31. Business Service
    Business Service says:

    I simply wished to say thanks again. I’m not certain the things I would have accomplished in the absence of the actual information shown by you concerning this industry. It was a depressing scenario in my opinion, but coming across a professional strategy you handled it took me to cry with joy. Now i’m happy for your guidance and as well , trust you recognize what a great job you’re getting into instructing others thru your web page. Most probably you haven’t come across any of us.

  32. says:

    I’m really enjoying the design and layout of your website.
    It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit
    more often. Did you hire out a designer to create your theme?

    Outstanding work!

  33. Mireya
    Mireya says:

    I need to to thank you for this very good read!! I definitely enjoyed every bit of it.
    I have got you saved as a favorite to look at new things you post…

  34. freddy
    freddy says:

    “Thank you for the good writeup. It actually was once a amusement account it. Glance complex to far added agreeable from you! By the way, how can we keep in touch?”

  35. Business Service
    Business Service says:

    I will right away clutch your rss feed as I can’t find your e-mail subscription link or newsletter service. Do you’ve any? Please let me know in order that I could subscribe. Thanks.

  36. my link
    my link says:

    I’m very happy to uncover this site. I wanted to thank you for your time due to this fantastic read!! I definitely enjoyed every part of it and i also have you bookmarked to check out new information on your website.

  37. Leora
    Leora says:

    Yоu’re ѕо cool! I doo not believᥱ Ⅰ hаve reaԁ a
    single thing likе this bᥱfore. So nicfe to fіnd sοmeone with unique
    tҺoughts on tҺis issue. Reаlly.. thanks for starting this uр.
    This webnsite is sometthing tɦat’s needesd on the web, someone wіtһ ѕome originality!

  38. Business Service
    Business Service says:

    I simply needed to thank you very much once more. I do not know what I might have done in the absence of these ways revealed by you directly on such a industry. It had become a daunting problem in my opinion, but encountering the very expert way you handled that took me to weep with fulfillment. I’m happy for your work and as well , wish you really know what a great job you were providing instructing many others through your site. I know that you have never met any of us.

  39. Mike
    Mike says:

    Greetigs I am soo hаppy I found your weblog, Ӏ really fouund
    ʏou byy accident, ᴡhile Ι ԝas searchiing օn Google for sоmething eⅼse, Regardldss Ӏ am herе
    now аnd would ϳust lіke tⲟ say cheers for a marvelous post ɑnd a all round interesting
    blog (I also love the theme/design), I dоn’t hɑve time to
    lok over it alⅼ at the minute but I ɦave book-marked іt
    and also ɑdded іn your RSS feeds, ѕo wһen I hae timе І will be back to read a grеat deal more, Pⅼease do keep up the awesome Ь.

  40. Business Service
    Business Service says:

    great publish, very informative. I ponder why the opposite experts of this sector do not realize this. You must proceed your writing. I am confident, you’ve a huge readers’ base already!

  41. content
    content says:

    I was pretty pleased to find this page. I want to to thank you for your time for this particularly wonderful read!! I definitely enjoyed every bit of it and I have you book marked to check out new things on your website.

  42. Harvard Law
    Harvard Law says:

    I’m still learning from you, but I’m trying to achieve my goals. I definitely liked reading all that is written on your blog.Keep the information coming. I enjoyed it!

  43. holistic medicine
    holistic medicine says:

    Thanks , I’ve recently been looking for information about this subject for a while and yours is the best I’ve found out till now. However, what about the bottom line? Are you positive about the supply?

  44. Rory
    Rory says:

    If you are going for mkst excellent contеnts ⅼike Ⅰ do, ϳust pay а visit
    tһіѕ website all thᥱ time becаuse it оffers quality сontents, tɦanks

  45. Automobile Repairs
    Automobile Repairs says:

    I needed to draft you a very little note in order to give thanks once again for the fantastic guidelines you have contributed on this site. This is seriously open-handed of people like you to present extensively what exactly many individuals would’ve offered as an electronic book to get some money for their own end, particularly since you could possibly have tried it if you ever decided. These secrets additionally served as the good way to fully grasp that other people online have a similar passion really like mine to understand a good deal more with regard to this matter. I think there are a lot more pleasant occasions up front for people who start reading your blog post.

  46. Vacation Packages
    Vacation Packages says:

    A lot of thanks for every one of your effort on this web site. Ellie really likes working on internet research and it’s really simple to grasp why. Most of us notice all concerning the lively way you offer insightful ideas via this blog and as well as strongly encourage contribution from website visitors on the subject so our own daughter is actually understanding a lot. Have fun with the remaining portion of the new year. You are performing a fantastic job.

  47. Living Room Furniture
    Living Room Furniture says:

    Whats Taking place i am new to this, I stumbled upon this I’ve found It absolutely helpful and it has helped me out loads. I am hoping to give a contribution & assist other customers like its helped me. Great job.

  48. home repair
    home repair says:

    Thanks for any other informative site. Where else could I am getting that kind of info written in such an ideal means? I have a mission that I am simply now running on, and I have been at the glance out for such information.

  49. Health and Fitness
    Health and Fitness says:

    you are truly a just right webmaster. The site loading pace is incredible. It sort of feels that you are doing any unique trick. Furthermore, The contents are masterpiece. you’ve performed a great activity in this matter!

  50. Garage
    Garage says:

    Thanks , I’ve just been looking for information about this subject for a long time and yours is the best I have came upon till now. But, what in regards to the conclusion? Are you sure in regards to the supply?

  51. Sanford
    Sanford says:

    Its lіke you rеad my mind! Yⲟu appeаr to knlw sօ much aƄοut thіs, ⅼike you wrote tɦе book in it or somethіng.
    I tɦink that you can doo ᴡith a few pics tо drive tһe message home a little bit,
    but otһеr than that, tɦis iѕ wonderful blog. A ǥreat read.

    I wіll definitelʏ be bacҝ.

  52. Travel and Leisure
    Travel and Leisure says:

    I simply had to thank you very much all over again. I am not sure the things I could possibly have implemented in the absence of the actual tricks documented by you about that topic. Certainly was an absolute daunting condition in my circumstances, but spending time with your skilled strategy you treated it took me to weep for delight. Extremely thankful for the guidance and in addition hope that you comprehend what an amazing job you are getting into training some other people through your webpage. I know that you haven’t got to know any of us.

  53. Online Store
    Online Store says:

    Thanks for the sensible critique. Me and my neighbor were just preparing to do a little research about this. We got a grab a book from our area library but I think I learned more from this post. I am very glad to see such excellent information being shared freely out there.

  54. arts and health
    arts and health says:

    I do not even know how I ended up here, but I thought this post was great. I don’t know who you are but definitely you’re going to a famous blogger if you aren’t already 😉 Cheers!

  55. kids health
    kids health says:

    I think other website proprietors should take this web site as an model, very clean and excellent user genial style and design, as well as the content. You are an expert in this topic!

  56. low carb recipes
    low carb recipes says:

    I’ve been surfing online more than three hours today, yet I never found any interesting article like yours. It is pretty worth enough for me. In my opinion, if all web owners and bloggers made good content as you did, the internet will be much more useful than ever before.

  57. educators
    educators says:

    I think this is among the most important info for me. And i’m glad reading your article. But want to remark on some general things, The web site style is great, the articles is really nice : D. Good job, cheers

  58. A Snip Technology
    A Snip Technology says:

    Just want to say your article is as astounding.
    The clarity in your post is simply nice and i could assume you are an expert
    on this subject. Well with your permission let me to grab your feed to keep up to date with
    forthcoming post. Thanks a million and please keep up the
    gratifying work.

  59. Business Service
    Business Service says:

    Good web site! I really love how it is simple on my eyes and the data are well written. I’m wondering how I could be notified whenever a new post has been made. I have subscribed to your RSS which must do the trick! Have a nice day!

  60. Business Service
    Business Service says:

    I’m really impressed with your writing skills and also with the layout on your weblog. Is this a paid theme or did you customize it yourself? Either way keep up the excellent quality writing, it is rare to see a nice blog like this one nowadays..

  61. Automotive
    Automotive says:

    I was just seeking this information for some time. After six hours of continuous Googleing, at last I got it in your web site. I wonder what’s the lack of Google strategy that do not rank this type of informative sites in top of the list. Normally the top websites are full of garbage.

  62. Home Product and Service
    Home Product and Service says:

    Excellent beat ! I would like to apprentice while you amend your site, how could i subscribe for a blog website? The account aided me a acceptable deal. I had been tiny bit acquainted of this your broadcast provided bright clear idea

  63. Read More Here
    Read More Here says:

    I simply want to say I’m new to blogs and really savored this blog. Very likely I’m going to bookmark your site . You surely come with fabulous articles and reviews. Cheers for revealing your blog site.

  64. Health & Fitness
    Health & Fitness says:

    Normally I don’t learn post on blogs, however I would like to say that this write-up very compelled me to try and do it! Your writing style has been surprised me. Thanks, quite nice post.

  65. Travel & Leisure
    Travel & Leisure says:

    I think this is among the most significant information for me. And i’m glad reading your article. But want to remark on some general things, The site style is perfect, the articles is really nice : D. Good job, cheers

  66. Auto Care and Service
    Auto Care and Service says:

    You can definitely see your expertise in the paintings you write. The sector hopes for even more passionate writers like you who aren’t afraid to mention how they believe. Always go after your heart. “Everyone has his day and some days last longer than others.” by Sir Winston Leonard Spenser Churchill.

  67. Combat Sports
    Combat Sports says:

    you are really a just right webmaster. The website loading pace is incredible. It kind of feels that you are doing any unique trick. Furthermore, The contents are masterwork. you have performed a fantastic task on this subject!


Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *