Coping with MS on weekend away

 Coping with MS

Coping with MS on weekend away… At long last went away for the weekend with my lovely husband, how did I cope with MS on weekend away?…  I was very worried how I would cope what with my progressive MS and my new Suprapubic catheter, I only had it put in the week before we went away.

Hatherley Manor HotelThe Hatherley Manor Hotel http://www.hatherleymanor.com my husband booked had a room accessible to a person in a wheelchair, and was on the ground floor so all looked good, it does demonstrate that wheelchair access to one person is not wheelchair access to another. The first problem the door to the room was a standard size opening, so my husband had to go in first, I held the door open the best I could and he pulled my wheelchair in, as I could not wheel myself in.

When we got in the room ok the bathroom I would say was a little larger than the average hotel bathroom and I could just get in there with my husband lifting the wheelchair through the sliding door, that once again had a standard opening, I could get my wheelchair under the sink which was great, unfortunately there was a very large mirror in front of the sink which on reflection was frightening, especially on Saturday morning when I saw my myself without makeup on Halloween of all days (no fancy dress needed here) back to the bathroom, shower on a hook on the wall in the bath,(how can that possibly be wheelchair friendly, was I supposed to magically get up and walk, get into the bath to take a shower, holding the grab rail with one hand and the shower head with the other) I don’t think so, the toilet did have a grab rail but I could only use it if I have brought my raised toilet seat, so the only part of the bathroom I could use was the sink.

The rest of the room had a small corridor from the bathroom to the bedroom which once again was standard width, could not get to the bed in my wheelchair as a bedside cabinet, small dressing table, two chairs and round coffee table in the way. The only way to access the dressing table was for the my wheelchair legs to be removed and bed side cabinet to be moved, to get into bed we had to get my chair as near to the right hand side of the bed (I sleep on the left) and hubby pulled me up, and we had to walk holding each other slowly to the left side of the bed avoiding the chair and large coffee table which could not be moved as there was no were to move them too, eventually got to the left side and I was helped to sit on the bed, one hell of a way down to the softest bed, almost like a water-bed that’s how soft low and squishy it was, we both thought it was the size of a small double or a large single. Anyway each time we went out or came in we had to got through the same rigmarole, but the restaurant made and effort to move a chair so I could sit at the table with my husband opposite, the service was very good and so was the food, beautifully presented and extremely tasty. All in all we had a great time away and my hubby has sent an email to the hotel highlighting a few of the issues we had during our stay… great to get away but just one question… why don’t companies employ a wheelchair user to advice them on what is needed in a room for a wheelchair user?

Gloucester  http://www.thecityofgloucester.co.uk/

Gloucester Cathedral

Our hotel was only 5 miles from the city centre of Gloucester so we spent the first morning going around the Quay then the Cathedral. The Cathedral is wheelchair friendly thank goodness, as soon as we went in I was taken aback by the sheer size and majestic sight of the architecture, the stain glass windows are beautiful defiantly recommend a visit.  We found a lovely little cafe to have lunch, in the centre which was a pedestrian only area near the Cathedral, weather so nice we sat outside and watched the world go by.

Cheltenham  www.visitcheltenham.com/ Cheltenham

Was the next port of call, we ended up just driving round and through the centre, as we couldn’t find anywhere to park, it was Saturday afternoon so not surprising really, the city looked lovely but without a place to park we decided to go back to the hotel to have tea and cakes(much better idea I thought)

That evening we had a great meal which was very tasty, and beautifully presented, the staff couldn’t have been more helpful. After diner we decided to have an early night so back to the room to watch a bit of tv before I feel a sleep.

Stratford-upon-Avon  http://www.visitstratforduponavon.co.uk/

Next morning Sunday after a great breakfast (full English for my husband of course) we checked out and decided to visit Stratford-upon-Avon, had to see the Bards house(Shakespeare) the place was packed, God knows what the summer would be like, took the obligatory photo and went down to the water side, was treated to a wonderful market and barges using the canal and locks. My poor husband was pushing me around as the terrain was very hilly and I didn’t have the strength to wheel myself. We still through we’d try one last place before we joined the motorway to head home,  nearest place of interest was:

Warwick  https://www.warwick-castle.com/

Aerial-View

Warwick Castle the entrance to the grounds looked impressive, but no where did it tell you how much it would be, but we decided to end our trip no matter what the price, saw a sign for disabled parking so headed for that, but we were stopped by an attendant saying sorry disabled bays now full, but we could park further down in the coach area, so off we when parked got into “Zippy” my wheelchair and headed for the Castle up all I can describe as a dirt track which was very very steep, my husband had to stop several times to catch his breath, even couples with baby buggies were struggling, well some how we got to the top and then saw the price, £6.00 for parking and £28.00 each to get in, my husband asked an attendant if there were any concessions but she said no one price for all, when he explained I was in a wheelchair she said that I could only access the surrounding grounds as everything else have steps and was not suitable for a wheelchair, she said if we didn’t want to enter she would call up the parking guy to let us out free of charge from the car park. If we have looked at the web site before we arrived we would have found all this out, but we didn’t so let that be a lesson for anywhere you are thinking of going, check first, the following was on the web site.


Warwick Castle was built as a mediaeval fortress and as such has a number of steps, narrow passageways and low doorways which can present a challenge to guests with reduced mobility. Should you require any further assistance during your visit, please speak to a member of the team who will be happy to help.


Though we were a little disappointed at least we tried.  the journey home took 4 hours but it was nice to get back, especially to our new firm bed. As the saying goes ” it’s nice to go away but always nice to get home”. But all in all I coped very well with my MS on our weekend away.

I hope you enjoyed reading Coping with MS on weekend away. To read more posts please visit www.amazon-lady.com

 

 

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